How can I contribute to the Maelstrom Catalogue?

a) You can join an existing network.

The Maelstrom Catalogue includes study networks with a variety of research interests, ranging from pregnancy and birth to healthy aging. If you are interested in including your study in the catalogue, please contact us. If your study can be integrated into one of the existing networks, we will proceed with its inclusion. We will only ask that you send us your study’s data dictionary. We will take care of the rest, including classifying the variables under the Maelstrom Research taxonomy and drafting the study description, which you will validate before publication.

 

b) You can start a new network.

You can also work with us to create a dedicated interface for your network in the Maelstrom Catalogue. In addition to being a cost-effective way to document studies in your network, this will allow you to estimate the potential to harmonize your data with that of other studies included in the catalogue.

 

How should I proceed to harmonize data?

To learn more about Maelstrom Research guidelines for retrospective data harmonization, read the following paper, visit the “Maelstrom Guidelines” and “Methods Library” sections, or simply get in touch with us!

 

How can I identify studies that collected the data I need?

By searching the Maelstrom Catalogue, you can identify studies that collected information useful in answering your research questions as well as details on the study design and the contact person for data access. Visit our tutorial to get started.

 

If my study contributes data to the Maelstrom Catalogue, should I be worried about data privacy issues?

Only the metadata (i.e., data describing other data) is documented in the Maelstrom Catalogue. All researchers interested in analyzing data collected by your study need to go through the standard data request procedure established by your organization. Individual participant data is not available through the Maelstrom Research website, all data access requests must follow each study’s data access protocol.

 

Who can access information about my study (i.e., only the metadata) documented in your catalogue?

Everyone. Metadata information is accessible to all.