Overview
| Acronym |
BETTER |
|---|---|
| Website | |
| Investigators | |
| Contacts | |
| Start Year | 2019 |
General Design
| Study Design | Registry |
|---|---|
| General Information on Follow Up (profile, frequency) |
Individuals with type 1 diabetes can self-enroll until 2023. Follow-up is planned yearly until 2023. Adults group: Participants aged 14 years and older have the option to complete one, two or three phases of the study. Each phase corresponds to one survey. Participants who have completed two surveys (i.e., completed Phase 2) or three surveys (i.e., completed Phase 3) are asked to fill yearly follow-up surveys. Children group: Only one survey is completed by parents at enrollment for participants under 14 years old. When children turn 14 years old they are invited to enroll in the adult group followup. |
| Recruitment Target |
|
| Number of Participants |
803 |
Access
| Possible Access to Data |
|
| Possible Access to Biosamples |
|
| Other |
Study Timeline
Each colour in the timeline graph below represents a separate Study Population, while each segment in the graph represents a separate Data Collection Event. Clicking on a segment gives more detailed information on a Data Collection Event.
Populations
BETTER - Adults
This population consists of people with type 1 diabetes who are at least 14 years old and are living in Quebec, Canada.
Sources of Recruitment
| General Population |
|
|---|---|
| Supplementary Information | Participants were recruited by voluntary enrolment through the study website. |
Selection Criteria
| Age | Minimum age 14 |
|---|---|
| Country | Canada |
| Territory | Quebec |
| Health Status | Type 1 diabetes |
Sample Size
| Number of Participants |
723 |
|---|
Data Collection Events
| Name | Description | Start | End |
|---|---|---|---|
| BETTER - Adults - Baseline Phase 1 | Participants completed an online questionnaire... | 2019 (April) | Ongoing |
| BETTER - Adults - Baseline Phase 2 | Participants completed an online questionnaire... | 2019 (April) | Ongoing |
| BETTER - Adults - Baseline Phase 3 | Participants completed an online questionnaire... | 2019 (April) | Ongoing |
| BETTER - Adults - Follow-up 1 | Participants who had answered Phase 1 and Phase... | 2020 (April) | 2024 (April) |
| BETTER - Adults - Follow-up 2 | Participants who had answered Phase 1 and Phase... | 2021 (April) | 2024 (April) |
| BETTER - Adults - Follow-up 3 | Participants who had answered Phase 1 and Phase... | 2022 (April) | 2024 (April) |
| BETTER - Adults - Follow-up 4 | Participants who had answered Phase 1 and Phase... | 2023 (April) | 2024 (April) |
BETTER - Children
The population consists of children who are 13 years old or younger and living with type 1 diabetes. Parents are asked to answer on behalf of their children.
Sources of Recruitment
| General Population |
|
|---|---|
| Supplementary Information | Parents of children with type 1 diabetes were recruited by voluntary enrolment through the study website. |
Selection Criteria
| Age | Maximum age 13 |
|---|---|
| Country | Canada |
| Territory | Quebec |
| Health Status | Type 1 diabetes |
Sample Size
| Number of Participants |
80 |
|---|
Data Collection Events
| Name | Description | Start | End |
|---|---|---|---|
| BETTER - Children - Baseline Phase 1 | Parents only complete one questionnaire about... | 2019 (April) | Ongoing |
Variables classifications
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