Biobank Standardisation and Harmonisation for Research Excellence in the European Union
BioSHaRE is a consortium of European leading biobanks and international researchers from all domains of biobanking science. The overall aim of the project is to build upon tools and methods available to achieve solutions for researchers to use pooled data from different cohort and biobank studies. This, in order to obtain the very large sample sizes needed to investigate current questions in multifactorial diseases. This aim is achieved through the development of harmonization and standardization tools, implementation of these tools and demonstration of their applicability.
As part of its mission, BioSHaRE will document information collected by participant biobanks and harmonize, integrate and co-analyse biobank-specific data to answer key research questions on chronic diseases.
Overview
- Acronym
- BioSHaRE-EU
- Website
- BioSHaRE-EU Website
- Investigators
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- Contacts
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Relevant Papers
Doiron D, Burton P, Marcon Y, Gaye A, Wolffenbuttel BHR, Perola M, Stolk RP, Foco L, Minelli C, Waldenberger M, Holle R, Kvaløy K, Hillege HL, Tassé A-M, Ferretti V, Fortier I. Data harmonization and federated analysis of population-based studies: the BioSHaRE project. Emerg Themes Epidemiol. 2013;10(1):12. PUBMED 24257327
Summary Statistics
Areas of Information Collected
- Socio-demographic and economic characteristics 9
- Death 6
- Lifestyle and behaviours 8
- Physical measures and assessments 9
- Birth, pregnancy and reproductive health history 6
- Laboratory measures 9
- Perception of health, quality of life, development and functional limitations 6
- Cognition, personality and psychological measures and assessments 7
- Diseases 9
- Life events, life plans, beliefs and values 5
- Symptoms and signs 5
- Preschool, school and work life 5
- Medication and supplements 6
- Social environment and relationships 5
- Non-pharmacological interventions 5
- Physical environment 6
- Health and community care services utilization 6
- Administrative information 9