Biobank Standardisation and Harmonisation for Research Excellence in the European Union

BioSHaRE is a consortium of European leading biobanks and international researchers from all domains of biobanking science. The overall aim of the project is to build upon tools and methods available to achieve solutions for researchers to use pooled data from different cohort and biobank studies. This, in order to obtain the very large sample sizes needed to investigate current questions in multifactorial diseases. This aim is achieved through the development of harmonization and standardization tools, implementation of these tools and demonstration of their applicability.

As part of its mission, BioSHaRE will document information collected by participant biobanks and harmonize, integrate and co-analyse biobank-specific data to answer key research questions on chronic diseases.

Overview

Acronym
BioSHaRE-EU
Website
BioSHaRE-EU Website
Investigators
Dr. Markus Perola
National Institute For Health and Welfare
Prof. Kristian Hveem
HUNT Research Centre
Dr. Ronald Stolk
University Medical Center Groningen
Dr. Hans Hillege
University of Groningen
Prof. Paul Burton
Newcastle University
Prof. Anthony Brookes
University of Leicester
Dr. Thomas Illig
Helmholtz Zentrum München, German Research Center for Environmental Health
Dr. Jennifer Harris
Norwegian Institute of Public Health
Dr. Samuli Ripatti
Institute for Molecular Medicine Finland
Contacts
Dr. Ronald Stolk
University Medical Center Groningen

Relevant Papers

Doiron D, Burton P, Marcon Y, Gaye A, Wolffenbuttel BHR, Perola M, Stolk RP, Foco L, Minelli C, Waldenberger M, Holle R, Kvaløy K, Hillege HL, Tassé A-M, Ferretti V, Fortier I. Data harmonization and federated analysis of population-based studies: the BioSHaRE project. Emerg Themes Epidemiol. 2013;10(1):12. PUBMED 24257327

Harmonization Initiatives

Acronym Name Variables

Summary Statistics

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Individual Studies

Acronym Name Study design Countries Participants Variables

Participating Networks

Acronym Name Harmonization Initiatives Individual Studies

Areas of Information Collected

Socio-demographic and economic characteristics 9
Death 6
Lifestyle and behaviours 8
Physical measures and assessments 9
Birth, pregnancy and reproductive health history 6
Laboratory measures 9
Perception of health, quality of life, development and functional limitations 6
Cognition, personality and psychological measures and assessments 7
Diseases 9
Life events, life plans, beliefs and values 5
Symptoms and signs 5
Preschool, school and work life 5
Medication and supplements 6
Social environment and relationships 5
Non-pharmacological interventions 5
Physical environment 6
Health and community care services utilization 6
Administrative information 9

Variables Content Summary

Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per per Study
No Areas of Information Collected
No Scales Collected
Last Update: 2021-11-25T09:58:59.567