Multiple Sclerosis Metadata Collective: A Collaborative Effort of North American Observational Studies in Multiple Sclerosis


Dr. Ruth Ann Marrie
University of Manitoba
Dr. Robert McBurney
Accelerated Cure Project fo MS
Dr. Peter Calabresi
Johns Hopkins School of Medicine
Dr. Joel Culpepper
University of Maryland
Dr. Robert Fox
Cleveland Clinic
Dr. David Li
University of British Columbia Hospital
June Halper
The Consortium of Multiple Sclerosis Centers
Sara Loud
Accelerated Cure Project for MS
Dr. Kottil Rammohan
University of Miami
Dr. Amber Salter
UT Southwestern
Dr. Caila Vaughn
University of Buffalo
Dr. Mitchell Wallin
Multiple Sclerosis Center of Excellence and George Washington University
Dr. Bianca Weinstock-Guttman
University of Buffalo
Dr. Ellen Mowry
John Hopkins School of Medicine
Dr. Kathryn Fitzgerald
John Hopkins School of Medicine
Dr. Bruce Bebo
National Multiple Sclerosis Society
Dr. Amber Salter
UT Southwestern

Harmonization Initiatives

Acronym Name Variables

Summary Statistics

No graphics available

Individual Studies

Acronym Name Study design Countries Variables

Participating Networks

Acronym Name Harmonization Initiatives Individual Studies

Areas of Information Collected

Socio-demographic and economic characteristics 15
Death 6
Lifestyle and behaviours 12
Physical measures and assessments 10
Birth, pregnancy and reproductive health history 6
Laboratory measures 8
Perception of health, quality of life, development and functional limitations 13
Cognition, personality and psychological measures and assessments 9
Diseases 15
Life events, life plans, beliefs and values 5
Symptoms and signs 8
Preschool, school and work life 5
Medication and supplements 15
Social environment and relationships 4
Non-pharmacological interventions 12
Physical environment 7
Health and community care services utilization 9
Administrative information 15

Variables Content Summary

Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per per Study
No Areas of Information Collected
No Scales Collected
Last Update: 2023-08-09T16:55:53.744