BEhaviors, Therapies, TEchnologies and hypoglycemic Risk in Type 1 diabetes

Overview

Acronym
BETTER
Website
BETTER
Investigators
  • Dr. Anne-Sophie Brazeau

    McGill University

  • Dr. Rémi Rabasa-Lhoret

    Institut de Recherches Cliniques de Montréal (IRCM)

Contacts
  • Dr. Anne-Sophie Brazeau

    McGill University

  • Dr. Rémi Rabasa-Lhoret

    Institut de Recherches Cliniques de Montréal (IRCM)

General Design

Study design
Registry
Start Year
2019
General Information on Follow Up (profile, frequency)

Individuals with type 1 diabetes can self-enroll until 2023. Follow-up is planned yearly until 2023.

Adults group: Participants aged 14 years and older have the option to complete one, two or three phases of the study. Each phase corresponds to one survey. Participants who have completed two surveys (i.e., completed Phase 2) or three surveys (i.e., completed Phase 3) are asked to fill yearly follow-up surveys.

Children group: Only one survey is completed by parents at enrollment for participants under 14 years old. When children turn 14 years old they are invited to enroll in the adult group followup.

Recruitment Target
  • Individuals
Number of Participants
803

Access

Availability of data and biosamples

Possible Access to Data
Possible Access to Biosamples
Other

Timeline

Populations

BETTER - Adults

Selection Criteria

Minimum age
14
Countries
  • Canada
Territory
Quebec
Health Status
  • Type 1 diabetes

Sources of Recruitment

General Population
  • Volunteer enrolment
Supplementary Information
Participants were recruited by voluntary enrolment through the study website.

Sample Size

Number of Participants
723

Data Collection Events

# Name Description Start End
0 BETTER - Adults - Baseline Phase 1 2019 (April) Ongoing
1 BETTER - Adults - Baseline Phase 2 2019 (April) Ongoing
2 BETTER - Adults - Baseline Phase 3 2019 (April) Ongoing
3 BETTER - Adults - Follow-up 1 2020 (April) 2024 (April)
4 BETTER - Adults - Follow-up 2 2021 (April) 2024 (April)
5 BETTER - Adults - Follow-up 3 2022 (April) 2024 (April)
6 BETTER - Adults - Follow-up 4 2023 (April) 2024 (April)
BETTER - Children

Selection Criteria

Maximum age
13
Countries
  • Canada
Territory
Quebec
Health Status
  • Type 1 diabetes

Sources of Recruitment

General Population
  • Volunteer enrolment
Supplementary Information
Parents of children with type 1 diabetes were recruited by voluntary enrolment through the study website.

Sample Size

Number of Participants
80

Data Collection Events

# Name Description Start End
0 BETTER - Children - Baseline Phase 1 2019 (April) Ongoing

Individual Studies Included

Acronym Name Study design Participants Countries

Harmonization Projects Included

Acronym Name

Networks

Acronym Name Studies

Datasets

Name Type Data Collection Events Variables
Last Update: 2021-04-29 21:43