1. Maelstrom Catalogue
  2. Individual Studies
  3. BETTER

BEhaviors, Therapies, TEchnologies and hypoglycemic Risk in Type 1 diabetes

The objectives of the BETTER registry are:
  • To provide a general portrait of the population with type 1 diabetes in Canada in terms of demographics, treatment, frequency and consequences of hypoglycemia, lifestyle habits, and complications of diabetes;
  • To measure the frequency and severity of hypoglycemic episodes;
  • To evaluate the potential of new technologies and therapies to reduce the frequency of hypoglycemia.

Overview

Acronym
BETTER
Website
BETTER
Investigators
Dr. Anne-Sophie Brazeau
McGill University
Contacts
Dr. Anne-Sophie Brazeau
McGill University

General Design

Study design
Registry
Start - End Year
2019 -
General Information on Follow Up (profile, frequency)

Adults: Participants are invited to answer an annual survey.

Children: Participants only complete one survey.

Recruitment Target
  • Individuals
Number of Participants
No Limit
Supplementary information about number of participants
As of March 2024, there are 3,929 participants enrolled in BETTER.
Supplementary Information
Parents are asked to answer the survey on behalf of participating children.

Access

Availability of data and biosamples

Possible Access to Data
Possible Access to Biosamples
Other
Yes
No
Not applicable
Don't know

Timeline

Populations

BETTER - Adults
The population consists of individuals with type 1 diabetes who are at least 14 years old and are living in Canada.

Selection Criteria

Minimum age
14
Countries
  • Canada
Canadian Provinces
  • Alberta
  • British Columbia
  • Manitoba
  • New Brunswick
  • Newfoundland and Labrador
  • Northwest Territories
  • Nova Scotia
  • Nunavut
  • Ontario
  • Prince Edward Island
  • Quebec
  • Saskatchewan
  • Yukon
Health Status
  • Type 1 diabetes

Sources of Recruitment

General Population
  • Volunteer enrolment
Participants from Existing Studies
  • BETTER
Supplementary Information
Participants were recruited by voluntary enrolment through the study website. If parental authorization is provided, children who participated in the BETTER registry are invited to pursue their participation on their own once they are 14 years old.

Sample Size

Number of Participants
No Limit

Data Collection Events

# Name Data sources Data sources - Biosamples Start End
0 BETTER - Adults - Baseline Phase 1
  • Questionnaires
2019 (April) Ongoing
1 BETTER - Adults - Baseline Phase 2
  • Questionnaires
  • Other : Lab test results
2019 (April) Ongoing
2 BETTER - Adults - Baseline Phase 3
  • Questionnaires
  • Physical measures
2019 (April) Ongoing
3 BETTER - Adults - Follow-up 1
  • Questionnaires
  • Physical measures
  • Other : Lab test results
2020 (April) Ongoing
4 BETTER - Adults - Follow-up 2
  • Questionnaires
  • Physical measures
  • Other : Lab test results
2021 (April) Ongoing
5 BETTER - Adults - Follow-up 3
  • Questionnaires
  • Physical measures
  • Other : Lab test results
2022 (April) Ongoing
6 BETTER - Adults - Follow-up 4
  • Questionnaires
  • Physical measures
  • Other : Lab test results
2023 (April) Ongoing
7 BETTER - Adults - Follow-up 5
  • Questionnaires
  • Physical measures
  • Other : Lab test results
2024 (April) Ongoing
BETTER - Children
The population consists of children who are 13 years old or younger and living with type 1 diabetes in Canada.

Selection Criteria

Maximum age
13
Countries
  • Canada
Canadian Provinces
  • Alberta
  • British Columbia
  • Manitoba
  • New Brunswick
  • Newfoundland and Labrador
  • Northwest Territories
  • Nova Scotia
  • Nunavut
  • Ontario
  • Prince Edward Island
  • Quebec
  • Saskatchewan
  • Yukon
Health Status
  • Type 1 diabetes

Sources of Recruitment

General Population
  • Volunteer enrolment
Supplementary Information
Parents of children with type 1 diabetes were recruited by voluntary enrolment through the study website.

Sample Size

Number of Participants
No Limit

Data Collection Events

# Name Data sources Data sources - Biosamples Start End
0 BETTER - Children - Baseline Phase 1
  • Questionnaires
2019 (April) Ongoing

Participating Studies

Acronym Name Study design Countries

Harmonization Initiatives Included

Acronym Name

Datasets

Name Data Collection Events Variables

Areas of Information Collected

Socio-demographic and economic characteristics
Death
Lifestyle and behaviours
Physical measures and assessments
Birth, pregnancy and reproductive health history
Laboratory measures
Perception of health, quality of life, development and functional limitations
Cognition, personality and psychological measures and assessments
Diseases
Life events, life plans, beliefs and values
Symptoms and signs
Preschool, school and work life
Medication and supplements
Social environment and relationships
Non-pharmacological interventions
Physical environment
Health and community care services utilization
Administrative information

Variables Content Summary

Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per per Population and Data Collection Event
No Areas of Information Collected
No Scales Collected

Networks

Acronym Name Harmonization Initiatives Individual Studies
Last Update: 2024-03-14T17:28:32.933