University of Manitoba IBD Research Registry
Manitoba Inflammatory Bowel Disease Research Registry (MIBD) was launched in 1995 and includes administrative immigration data for Manitobans with IBD from 1984.
The objectives of this registry are:
* To understand the burden of disease, burden to patents in terms of concurrent other health issues and the burden to society in terms of health care utilization and costs.
* To report on adverse outcomes like death, or serious complications like cancer, blood clots, or fractures.
* To explore potential causes of disease.
Overview
- Acronym
- UMIBDRR
- Website
- UMIBDRR
- Investigators
-
- Contacts
-
General Design
- Study design
- Registry
- Start - End Year
- 1995 -
- Recruitment Target
-
- Individuals
- Number of Participants
- 4,500
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
|
Marker Papers
Bernstein CN, Blanchard JF, Rawsthorne P, et al. Epidemiology of Crohn's disease and ulcerative colitis in a central Canadian province: a population-based study. Am J Epidemiol. 1999 ;149(10):916-24.
PUBMED 10342800Supplementary Information
* Rawsthorne P, Clara I, Graff LA, et al. The Manitoba Inflammatory Bowel Disease Cohort Study: a prospective longitudinal evaluation of the use of complementary and alternative medicine services and products. Gut. 2012 ;61(4):521-7.
* Burgmann T, Clara I, Graff L, et al. The Manitoba Inflammatory Bowel Disease Cohort Study: prolonged symptoms before diagnosis--how much is irritable bowel syndrome? Clin Gastroenterol Hepatol. 2006 ;4(5):614-20.
Timeline
Population
MIBD population
The population is composed of Manitoba residents with inflammatory bowel disease.
Selection Criteria
- Countries
-
- Canada
- Canadian Provinces
-
- Manitoba
- Health Status
-
- Individuals are included if they were diagnosed with the Crohn’s disease or ulcerative colitis
- Other Criteria
- Individuals are included if they are registered in the population-based administrative health registry of Manitoba Health and consented to be contacted for the IBD-related research study
Sources of Recruitment
- Specific Population
-
- Clinic patients
- Supplementary Information
-
Participants from the Manitoba IBD Epidemiology Database who accepted through mailed surveys to volunteered to be “known” within the registry were recruited.
Sample Size
- Number of Participants
- 4,500
Data Collection Events
| # | Name | Data sources | Data sources - Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | MIBD - Data Capture |
|
1995 (January) | Ongoing |
Participating Studies
| Acronym | Name | Study design | Countries |
|---|
Harmonization Initiatives Included
| Acronym | Name |
|---|
Datasets
| Name | Data Collection Events | Variables |
|---|
Areas of Information Collected
- Socio-demographic and economic characteristics
- Death
- Lifestyle and behaviours
- Physical measures and assessments
- Birth, pregnancy and reproductive health history
- Laboratory measures
- Perception of health, quality of life, development and functional limitations
- Cognition, personality and psychological measures and assessments
- Diseases
- Life events, life plans, beliefs and values
- Symptoms and signs
- Preschool, school and work life
- Medication and supplements
- Social environment and relationships
- Non-pharmacological interventions
- Physical environment
- Health and community care services utilization
- Administrative information
Variables Content Summary
Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per per Population and Data Collection Event
No Areas of Information Collected
No Scales Collected
Networks
| Acronym | Name | Harmonization Initiatives | Individual Studies |
|---|
Last Update: 2024-02-27T15:40:45.050