North American Research Committee on Multiple Sclerosis Registry

Overview

Acronym
NARCOMS
Website
NARCOMS
Investigators
  • Dr. Robert Fox

    Cleveland Clinic

  • Dr. Ruth Ann Marrie

    University of Manitoba

  • Dr. Amber Salter

    Washington University in St. Louis

  • Dr. Gary Cutter

    University of Alabama at Birmingham

Contacts
  • Michele Curran

    NARCOMS Coordinating Center

General Design

Study design
Registry
Start - End Year
1996 -
General Information on Follow Up (profile, frequency)
Recruitment Target
  • Individuals
Number of Participants
41,000
Supplementary information about number of participants
Supplementary Information

Access

Availability of data and biosamples

Possible Access to Data
Possible Access to Biosamples
Other

Marker Paper

Marrie RA, Cutter G, Tyry T, Campagnolo D, Vollmer T. 2007. Validation of the NARCOMS registry: diagnosis. Mult Scler 13(6):770-5

PUBMED 17525097

Supplementary Information

Timeline

Population

NARCOMS population

Selection Criteria

Minimum age
18
Health Status

Sources of Recruitment

General Population
  • Volunteer enrolment
Specific Population
  • Other specific population : Members of the National Multiple Sclerosis Society (NMSS), Consortium of Multiple Sclerosis Centers (CMSC), Paralyzed Veterans of American (PVA), and Eastern Paralyzed Veterans Association (EPVA)
Supplementary Information

Sample Size

Number of Participants
41,000
Supplementary Information about Population

Data Collection Events

# Name Description Start End
0 NARCOMS - Enrollment 1996 Ongoing
1 NARCOMS - Follow-up 1 2000 (April) 2000 (June)
2 NARCOMS - Follow-up 2 2000 (October) 2000 (December)
3 NARCOMS - Follow-up 3 2001 (April) 2001 (June)
4 NARCOMS - Follow-up 4 2001 (October) 2001 (December)
5 NARCOMS - Follow-up 5 2002 (April) 2002 (June)
6 NARCOMS - Follow-up 6 2002 (October) 2002 (December)
7 NARCOMS - Follow-up 7 2003 (April) 2003 (June)
8 NARCOMS - Follow-up 8 2003 (October) 2003 (December)
9 NARCOMS - Follow-up 9 2004 (April) 2004 (June)
10 NARCOMS - Follow-up 10 2004 (October) 2004 (December)
11 NARCOMS - Follow-up 11 2005 (April) 2005 (June)
12 NARCOMS - Follow-up 12 2005 (October) 2005 (December)
13 NARCOMS - Follow-up 13 2006 (April) 2006 (June)
14 NARCOMS - Follow-up 14 2006 (October) 2006 (December)
15 NARCOMS - Follow-up 15 2007 (April) 2007 (June)
16 NARCOMS - Follow-up 16 2007 (October) 2007 (December)
17 NARCOMS - Follow-up 17 2008 (April) 2008 (June)
18 NARCOMS - Follow-up 18 2008 (October) 2008 (December)
19 NARCOMS - Follow-up 19 2009 (April) 2009 (June)
20 NARCOMS - Follow-up 20 2009 (October) 2009 (December)
21 NARCOMS - Follow-up 21 2010 (April) 2010 (June)
22 NARCOMS - Follow-up 22 2010 (October) 2010 (December)
23 NARCOMS - Follow-up 23 2011 (April) 2011 (June)
24 NARCOMS - Follow-up 24 2011 (October) 2011 (December)
25 NARCOMS - Follow-up 25 2012 (April) 2012 (June)
26 NARCOMS - Follow-up 26 2012 (October) 2012 (December)
27 NARCOMS - Follow-up 27 2013 (April) 2013 (June)
28 NARCOMS - Follow-up 28 2013 (October) 2013 (December)
29 NARCOMS - Follow-up 29 2014 (April) 2014 (June)
30 NARCOMS - Follow-up 30 2014 (October) 2014 (December)
31 NARCOMS - Follow-up 31 2015 (April) 2015 (June)
32 NARCOMS - Follow-up 32 2015 (October) 2015 (December)
33 NARCOMS - Follow-up 33 2016 (April) 2016 (June)
34 NARCOMS - Follow-up 34 2016 (October) 2016 (December)
35 NARCOMS - Follow-up 35 2017 (April) 2017 (June)
36 NARCOMS - Follow-up 36 2017 (October) 2017 (December)
37 NARCOMS - Follow-up 37 2018 (April) 2018 (June)
38 NARCOMS - Follow-up 38 2018 (October) 2018 (December)
39 NARCOMS - Follow-up 39 2019 (April) 2019 (June)
40 NARCOMS - Follow-up 40 2019 (October) 2019 (December)
41 NARCOMS - Follow-up 41 2020 (April) 2020 (June)
42 NARCOMS - Follow-up 42 2020 (October) 2020 (December)

Participating Studies

Acronym Name Study design Countries

Harmonization Initiatives Included

Acronym Name

Networks

Acronym Name Harmonization Initiatives Individual Studies

Datasets

Name Type Data Collection Events Variables
Last Update: 2021-01-25 16:24