Programme of Research on the Evolution of a Cohort Investigating Health System Effects
The overall goal of this project is to longitudinally follow the health and healthcare experience of individuals:
- To describe changes in functional health, chronic illness burden and health behaviours;
- To examine the impact of patient-centred and effective primary healthcare on functional health and other outcomes of interest (health behaviours, chronic illness burden, health service utilization);
- To explore the relationships between intermediate outcomes and individual characteristics, and functional health.
Overview
- Acronym
- PRECISE
- Investigators
-
- Contacts
-
General Design
- Study design
- Cohort
- Start - End Year
- 2010 - 2013
- General Information on Follow Up (profile, frequency)
-
Two cohorts of patients were created: a clinical cohort and a populational cohort. Participants were asked to complete an annual auto-administrated questionnaire for 3 years from 2010 to 2013. Administrative data was also collected for the same period.
- Recruitment Target
-
- Individuals
- Number of Participants
- 3,233
- Number of Participants with Biological Samples
- 0
- Supplementary information about number of participants
-
T0: 3233 participants
T1: 2507 participants
T2: 2205 participants
T3: 2029 participants
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
|
Marker Papers
Haggerty J, Fortin M, Beaulieu MD, et al. At the interface of community and healthcare systems: a longitudinal cohort study on evolving health and the impact of primary healthcare from the patient's perspective. BMC Health Serv Res.2010;10:258
PUBMED 20815880Timeline
Populations
Health system users were recruited over the phone in the same four local healthcare areas as participants in the clinical cohort. They did not need to have a particular affiliation with a health professional.
Selection Criteria
- Minimum age
-
25
- Maximum age
-
75
- Countries
-
- Canada
- Canadian Provinces
-
- Quebec
- Territory
-
Within the geographic boundaries of four local healthcare networks in metropolitan, rural and remote urban agglomerations of Quebec.
- Other Criteria
-
- Do not suffer from major cognitive impairment;
- Able to respond to written and oral questions in English or French.
Sources of Recruitment
- General Population
-
- Random digit dialing
Sample Size
- Number of Participants
- 2,406
- Supplementary information about number of participants
-
T0: 2406 participants
T1: 1718 participants
T2: 1512 participants
T3: 1408 participants
Data Collection Events
| # | Name | Data sources | Data sources - Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | PRECISE - T0 |
|
2010 | 2010 | |
| 1 | PRECISE - T1 |
|
2010 | 2010 | |
| 2 | PRECISE - T2 |
|
2011 | 2011 | |
| 3 | PRECISE - T3 |
|
2012 | 2012 |
The participants were recruited in waiting rooms of 12 participating clinics (3 clinics within each geographic boundaries of four local healthcare networks in Quebec). Participants needed to have an affiliation with a family doctor or nurse from the recruitment clinic to be eligible.
Selection Criteria
- Minimum age
-
25
- Maximum age
-
75
- Countries
-
- Canada
- Canadian Provinces
-
- Quebec
- Territory
-
Within the geographic boundaries of four local healthcare networks in metropolitan, rural and remote urban agglomerations of Quebec.
- Other Criteria
-
- Do not suffer from major cognitive impairment;
- Able to respond to written and oral questions in English or French.
Sources of Recruitment
- Specific Population
-
- Clinic patients
Sample Size
- Number of Participants
- 827
- Supplementary information about number of participants
-
T0: 827 participants
T1: 789 participants
T2: 693 participants
T3: 621 participants
Data Collection Events
| # | Name | Data sources | Data sources - Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | PRECISE - T0 |
|
2010 | 2010 | |
| 1 | PRECISE - T1 |
|
2010 | 2010 | |
| 2 | PRECISE - T2 |
|
2011 | 2011 | |
| 3 | PRECISE - T3 |
|
2012 | 2012 |
Participating Studies
| Acronym | Name | Study design | Countries |
|---|
Harmonization Initiatives Included
| Acronym | Name |
|---|
Datasets
| Name | Data Collection Events | Variables |
|---|
Areas of Information Collected
- Socio-demographic and economic characteristics
- Death
- Lifestyle and behaviours
- Physical measures and assessments
- Birth, pregnancy and reproductive health history
- Laboratory measures
- Perception of health, quality of life, development and functional limitations
- Cognition, personality and psychological measures and assessments
- Diseases
- Life events, life plans, beliefs and values
- Symptoms and signs
- Preschool, school and work life
- Medication and supplements
- Social environment and relationships
- Non-pharmacological interventions
- Physical environment
- Health and community care services utilization
- Administrative information
Variables Content Summary
Areas of Information Collected
Areas of Information Collected per per Population and Data Collection Event
Networks
| Acronym | Name | Harmonization Initiatives | Individual Studies |
|---|